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Re: Who knows what neurofibromatosis is?

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LimitReached is not online. LimitReached
Joined: 24 Jul 2013
Total Posts: 1472
21 Jan 2014 10:54 PM
Anyone?:L
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LimitReached is not online. LimitReached
Joined: 24 Jul 2013
Total Posts: 1472
21 Jan 2014 10:56 PM
*sighs*
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Xaic is not online. Xaic
Joined: 09 Nov 2008
Total Posts: 323
21 Jan 2014 10:59 PM
Want me to look it up for you man?
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Aczero is not online. Aczero
Joined: 17 Dec 2012
Total Posts: 13533
21 Jan 2014 10:59 PM
aqqqqqqqqqqqqqqq
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LimitReached is not online. LimitReached
Joined: 24 Jul 2013
Total Posts: 1472
21 Jan 2014 10:59 PM
I wish I knew somone else with it who played this game... :L
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LimitReached is not online. LimitReached
Joined: 24 Jul 2013
Total Posts: 1472
21 Jan 2014 11:02 PM
:/
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Aczero is not online. Aczero
Joined: 17 Dec 2012
Total Posts: 13533
21 Jan 2014 11:04 PM
google it u probally get answers dere
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LimitReached is not online. LimitReached
Joined: 24 Jul 2013
Total Posts: 1472
21 Jan 2014 11:05 PM
I know what it is... I just want to know if anyone else does. I want to meet more people with the same thing that I have.
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LimitReached is not online. LimitReached
Joined: 24 Jul 2013
Total Posts: 1472
21 Jan 2014 11:08 PM
Please somone.
1/3000 people have it. You must know somone with it. :/
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HeatedRage is not online. HeatedRage
Joined: 19 May 2013
Total Posts: 1050
21 Jan 2014 11:08 PM
Never heard of it till now :/
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LimitReached is not online. LimitReached
Joined: 24 Jul 2013
Total Posts: 1472
21 Jan 2014 11:10 PM
That's the sad thing. It's so comman, but almost no one knows what it is.
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HeatedRage is not online. HeatedRage
Joined: 19 May 2013
Total Posts: 1050
21 Jan 2014 11:11 PM
Yeah looks pretty bad :/
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Aczero is not online. Aczero
Joined: 17 Dec 2012
Total Posts: 13533
21 Jan 2014 11:11 PM
wait you have it? i searched it up and looked at images.. um o_o qq
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LimitReached is not online. LimitReached
Joined: 24 Jul 2013
Total Posts: 1472
21 Jan 2014 11:12 PM
It's done so much to me. And I am having surgery on my leg next week. I'm just so stressed and depressed.
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HeatedRage is not online. HeatedRage
Joined: 19 May 2013
Total Posts: 1050
21 Jan 2014 11:12 PM
Does it ever go away? or is it permanent?
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LimitReached is not online. LimitReached
Joined: 24 Jul 2013
Total Posts: 1472
21 Jan 2014 11:13 PM
I'm crying right now I just wanted somone else who goes through it to talk to.
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Aczero is not online. Aczero
Joined: 17 Dec 2012
Total Posts: 13533
21 Jan 2014 11:13 PM
idk how to explain this.. qq
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LimitReached is not online. LimitReached
Joined: 24 Jul 2013
Total Posts: 1472
21 Jan 2014 11:13 PM
No. There is no cure
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HeatedRage is not online. HeatedRage
Joined: 19 May 2013
Total Posts: 1050
21 Jan 2014 11:17 PM
So you just keep getting surgery?
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LimitReached is not online. LimitReached
Joined: 24 Jul 2013
Total Posts: 1472
21 Jan 2014 11:21 PM
No.
One of the things that NF can do to you is cause bone deformities
When I was born, my leg was crooked. Over they years, it got better, but then worse and worse.
We had no choice but to get surgery
Now the last surgery failed, and I'm going for a second one. This one is called a lizarov. Don't know if that's the correct spelling, but another name is an external fixator.
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HeatedRage is not online. HeatedRage
Joined: 19 May 2013
Total Posts: 1050
21 Jan 2014 11:21 PM
o that sucks alot
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LimitReached is not online. LimitReached
Joined: 24 Jul 2013
Total Posts: 1472
21 Jan 2014 11:22 PM
Yep. :l
I'm going to try and learn scripting while recovering.
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UrsaRex is not online. UrsaRex
Joined: 15 Dec 2012
Total Posts: 345
21 Jan 2014 11:23 PM
My sister has it bro, I'll talk to you about it. If you need a shoulder to cry on, I'm here for you.
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salem9 is not online. salem9
Joined: 25 Oct 2008
Total Posts: 23312
21 Jan 2014 11:23 PM
i looked it up quickly, and I did quick image search on google. are those first two rows of pictures really what can happen from neurobriomatosis?

this is the external fixation stuff for curious people: https://en.wikipedia.org/wiki/External_fixation

I hope your surgery goes well.
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LimitReached is not online. LimitReached
Joined: 24 Jul 2013
Total Posts: 1472
21 Jan 2014 11:24 PM
Yes. It can do a whole lot to you. There are so many different things. And thank you so much. You have no idea how much that means to me. :.)
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